Institute of Translational Health Sciences at the University of Washington
University of Washington's Institute of Translational Health Sciences (ITHS) facilitates translational research to improve health across the Washington, Wyoming, Alaska, Montana, and Idaho region.
Organization Contact
Kari Stephens
kstephen@uw.edu
Data QUEST
Data QUEST provides access to electronic health datasets from community-based primary care clinics in the Northwest region. Data QUEST links engaged communities with researchers to meet the health needs of communities of under-served and rural populations.
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Data QUEST, supported by the Institute of Translational Health Sciences, is an electronic health data-sharing architecture across community-based primary care practices in Washington and Idaho.
Data QUEST is designed to provide access to research datasets generated from electronic medical record systems within our primary care community-based practice partner settings to catalyze both regional and national health discoveries.
From cohort discovery to clinical trials to comparative effectiveness research, you can use our innovative data-sharing tools to streamline and enhance your next community-based research study.
Our expert team will work with you to determine how to conduct your project with our community-based partners. We also offer technical assistance to help you define datasets to drive your research.
Data QUEST is designed to provide access to research datasets generated from electronic medical record systems within our primary care community-based practice partner settings to catalyze both regional and national health discoveries.
From cohort discovery to clinical trials to comparative effectiveness research, you can use our innovative data-sharing tools to streamline and enhance your next community-based research study.
Our expert team will work with you to determine how to conduct your project with our community-based partners. We also offer technical assistance to help you define datasets to drive your research.
Steps Required to Obtain Data
Gaining access to Data QUEST data involves the following five steps:
1. Use our website to learn what data are available via Data QUEST.
2. Make an initial request to see if your research needs fit with available Data QUEST data.
3. Work with our expert team to gain appropriate permissions to use data. Our team will work with our community partners to help you get the needed permissions, and to make sure all appropriate regulatory requirements are met.
4. Request the data. Our expert team will help you define the specifications and data elements you will need for your study, and will work with you to make sure your project timelines can be met.
5. Obtain the data. Our team will deliver your dataset and a data dictionary.
You can contact us through our website.
1. Use our website to learn what data are available via Data QUEST.
2. Make an initial request to see if your research needs fit with available Data QUEST data.
3. Work with our expert team to gain appropriate permissions to use data. Our team will work with our community partners to help you get the needed permissions, and to make sure all appropriate regulatory requirements are met.
4. Request the data. Our expert team will help you define the specifications and data elements you will need for your study, and will work with you to make sure your project timelines can be met.
5. Obtain the data. Our team will deliver your dataset and a data dictionary.
You can contact us through our website.
On average, how long does it take to access the data?
A few weeks from start to finish
Category
Clinical
Originating Data Source
Provider
Patient
Other
Clinic staff, electronic health record system
Intended End User
Academia
Business
Data Type
Raw
Aggregate/Analysis
Data Format
Any
Additional Processing Required
No
Is the data identifiable?
Yes
Real or Synthetic Data
Real
Data is Updated
A few times a year
Free of Charge?
No
Depends on the complexity of the request