TRAILS Resource Toolkit: Bringing Innovations to Palliative Care

Building solutions to complex problems often requires leveraging several tools and best practices. We've pulled together a few resources to support applicants for the 2020 TRAILS competition who are asked to bring solutions that improve care of seriously ill people and their families. 

Palliative care is a practice that requires a comprehensive understanding of patients wishes by their families, caregivers, clinical care teams and other supporters. This practice requires communication and coordination of care amongst the stakeholders and great cultural appropriateness with the patient and their families. The materials listed below are not inclusive or intended to be prescriptive of any one solution for this year’s competition, rather they are intended to be a starting point for anyone interested in learning more about this topic or applying for this competition.

Common Terms and Definitions:

  • What does Palliative Care mean? Palliative care is an interdisciplinary medical caregiving approach aimed at optimizing quality of life and mitigating suffering among people with serious, complex illness.

The National Landscape:

  • State based Reports from CAPC
    As more state-level champions and health officials explore opportunities to expand palliative care access, data on the current palliative care landscape can help prioritize efforts. CAPC’s new state-level reports provide information about palliative care access in your state, along with recommendations to improve it.
  • The Advanced Care Transformation (ACT) IndexSM by C-TAC
    The ACT IndexSM allows policymakers, regulators, health care providers, communities, and consumers to assess the overall performance of the serious illness care movement through measured change over time. While the index initially captured performance at the national level, C-TAC adapted the composite for state-level use in 2018 to allow for state-to-state comparisons and highlight opportunities for improvement.

Reference Material: 

  • Using Palliative Care to Support Equitable Care in the Midst of COVID-19
    This CAPC article, published June, 15, 2020, provides an overview of COVID-19-related health and health care inequities for African Americans, palliative care’s role in caring for impacted patients and families, and CAPC tools to support these efforts.
  • Telehealth and Palliative Care, a comprehensive telehealth resource kit published by CAPC to assist providers.
  • Under the Aspens
    Cambia Grove recently hosted a fireside chat with Tom Merrill, Principal at Redstone, and Peggy Maguire, President of the Cambia Health Foundation, and Senior VP, Corporate Social Responsibility and Palliative Care Solutions for Cambia Health Solutions. They explored the work being done to help people and families living with serious illness live well and the need for innovative solutions to transform the way seriously ill people and caregivers experience health care.
  • Recommendations from the Bree Collaborative
    Based in Washington state, this report details focus areas to increase accessibility and quality of palliative care and gives the innovator a deep insight into the many complexities of the issue. 
  • Blog -- Innovating in Palliative Care: An Entrepreneur's Take
    Cambia Grove members Sarah Stacpoole, RN, BSN and Sam Garrard, Senior PR Associate at RH Strategic dive into the challenges and opportunities facing palliative care.
  • TRAILS Competition Launch Event: Bringing Solutions to Palliative Care
    Cambia Grove hosted  palliative care experts from across the 5 Points of Health Care on September 9, 2020 to kickoff this year's call for innovations that improve care for seriously ill patients and their families. Recap of the event can be found here
  • Institute for Healthcare Improvement: The Conversation Project "What Matters to Me" Workbook
    The “What Matters to Me” Workbook was jointly created by Ariadne Labs and The Conversation Project to help people with a serious illness think through and talk about what matters most to them – to make sure they get the care they want.
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