Data Resource Directory

The Cambia Grove Data Resource Directory highlights valuable resources that are available to changemakers in health care.

Data resources included in this directory are required to meet the following criteria:

  1. the data could be used to improve the health of individuals or populations,
  2. the data is currently accessible to health care changemakers,
  3. the steps to gain access are clear.

To edit your existing data resource, please email info@cambiagrove.com

20 of 20 DATA RESOURCES
BetterDoctor / Quest Analytics

BetterDoctor Provider Data API

Accurate healthcare provider data that you can count on through primary source attestation.
Boston Children's Hospital, Computational Health Informatics Program

SMART Sandbox and Sample Data

The SMART Health IT Sandbox is a virtual testing environment that mimics a live EHR production environment, but is populated with sample data. It is provided by the SMART Health IT project as a free service to the healthcare app development community and is for testing purposes only.
CIVHC

Colorado All Payer Claims Database

The CO APCD is the state's most comprehensive source of health care insurance claims information representing the majority of covered lives in the state across commercial health insurance plans, Medicare, and Health First Colorado (Colorado's Medicaid program).
Foundation for Health Care Quality

FHCQ Care Outcome Assessment Programs

There are four active Care Outcomes Assessment Programs (COAP) built around their respective clinical registries that record a significant percentage of all procedures in Washington State.

Almost every hospital in the state participates in one or more of our programs:

Cardiac COAP - for cardiac procedures (100%)
Spine COAP - for spine surgery (70%)
Surgical COAP - for bariatric and bowel surgery (30%)
OB COAP - for obstetrical care (35%)
Fred Hutchinson Cancer Research Center

HICORIQ.org

HICOR’s data asset is designed to answer oncology-related research and quality improvement questions by combining clinical information from two Washington state cancer registries with health utilization and cost data from health insurers in the state.
Fred Hutchinson Cancer Research Center

Clinic Notes

Nearly 500,000 reports from the pathology source system, including a wide variety of surgical pathologies, cytology, bone marrow aspirates, lumbar punctures, and cytogenetics testing. This also includes slide reviews for any patients being treated at the Fred Hutch/UW Cancer Consortium who were originally diagnosed elsewhere.

3.8 million diagnostic/imaging reports, including X-Rays, Mammographies, CT’s, MRI’s, and Ultrasound guided procedures. There are also narrative texts from the clinical note repository. Note types include medical oncology progress notes, discharge summaries, nursing notes, long term follow up, etc.
Global Alzheimer's Association Interactive Network (GAAIN)

GAAIN

GAAIN's powerful interactive tools allow users to explore data and create cohorts across multiple data sources and run immediate preliminary analysis while upholding the data control, security, and privacy policies of data owners. These tools are freely accessible to all at www.gaaindata.org. A wide and vastly varying range of metadata from nearly 500,000 subjects can be explored using these tools. Attributes include demographics, assessments, health factors, biologicals, imaging and genetics.
Institute for Health Metrics and Evaluation at the University of Washington

Global Burden of Disease (GBD)

IHME strives to improve the health of the world's populations by making available the highest-quality information on population health, its determinants, and the performance of health systems. Transparency is one of IHME's core principles and we are working to help expand access to the raw data that we use in our evaluations.

IHME Client Services is a social enterprise within the University of Washington, which promotes and licenses IHME's population health data to private sector organizations.
Institute of Translational Health Sciences at the University of Washington

Data QUEST

Data QUEST provides access to electronic health datasets from community-based primary care clinics in the Northwest region. Data QUEST links engaged communities with researchers to meet the health needs of communities of under-served and rural populations.
Leavitt Partners Insight

Torch Insight

Torch Insight, from Leavitt Partners, provides comprehensive and accurate data on the unique attributes of ACOs, bundled payments, hospitals, physician groups, insurance carriers, and more. We make complex decisions easier by aggregating multiple data sources in a user-friendly platform. Our team has integrated and linked thousands of variables from public and proprietary data sources, allowing clients to quickly answer complex questions that traditional data resources can't solve on their own.
Oregon Health Authority, Health Policy and Analysis

All Payer All Claims Program

The Oregon All Payer All Claims Database (APAC) is a large database that houses administrative health care data for Oregon's insured populations. It includes medical and pharmacy claims, enrollment data, premium information, and provider information for Oregonians who are insured through commercial insurance, Medicaid, and Medicare. Data files are received on a rolling 12 month basis from the date incurred. Established in 2009, APAC has data for analysis 2011- to the current completed year.
Qualis Health

Medicare FFS Data

Medicare FFS claims: There are 830,000 covered in the WA Medicare data and 190,000 lives covered in the ID Medicare data. Data are available for each institutional (in-patient) and non-institutional (out-patient) claim type, which each record being a claim. Some of the information contained within these utilization files includes:
* Procedure/diagnosis/medication fill information
* Dates of service
* Revenue center detail
* Payment and charge amounts
* Beneficiary demographic information
State Health Access Data Assistance Center

State Health Compare

State Health Compare allows users to generate customized reports for a range of state-level health estimates, drawing on multiple data sources.
United States Department of Health and Human Services

HealthData.gov

The site is dedicated to making high value health data more accessible to entrepreneurs, researchers, and policy makers in the hopes of better health outcomes for all.
Washington Health Alliance

Community Checkup Results / Clinic Rosters

The Alliance makes available data files containing detailed quality results from Community Checkup reports and/or clinic/physician rosters for Washington state.
Washington State Department of Health

Washington Tracking Network

The primary goal of the Washington Tracking Network (WTN) is to improve public and public health professional web access to environmental and public health data and information to promote investigation and action to improve the health of communities. The target audiences are public health practitioners, healthcare providers, community members, and policy makers.

Some topics in WTN include: air quality, asthma, birth outcomes, cancer, climate change, heart disease, pesticides and opioids.
Washington State Department of Health

Behavioral Risk Factor Surveillance System

The BRFSS is a yearly survey that measures changes in the health of people in the United States. It is the longest continuously running phone survey in the world. This survey is an important source of health-related data. It is the only survey that collects information on certain health factors like tobacco use and insurance coverage.
Washington State DOH, OSPI, HCA & LCB

Healthy Youth Survey (HYS)

The Healthy Youth Survey (HYS) is administered in the fall of even years to students in grades 6, 8, 10 and 12 in WA. The survey contains questions about a wide variety of adolescent health and behavior topics, from substance use to bullying to water safety to suicidal ideation. Schools choose whether to register for the survey. Each year a state sample is taken, as are county samples for the larger counties. The state sample is used when comparing state-level estimates from year to year.
Washington State Office of Financial Management

Washington State All-Payer Claims Database (WA-APCD)

The WA-APCD is the state's most complete source of health and dental insurance data. It contains claims from more than 30 commercial health care payers; the Medicaid program, including its five managed care plans; and Medicare Advantage, the HMO products for Medicare members. The WA-APCD has historical claims data starting in 2013, and each calendar quarter, the most current claims data are added to the all-payer dataset. Data from Washington's workers' compensation program are also available.